When Collin was born, his sister called him her "princey fellow." Collin was diagnosed with High Risk Metastatic Medulloblastoma (a brain tumor that had spread to his spine) on 4/22/10 at 16 months of age. He has had brain surgery, high dose chemo, an autologous stem-cell rescue, maintenance chemo, a phase II trial, more chemo, and radiation to his brain and spine. He has relapsed twice, but is fighting with such strength and courage, we have more recently dubbed him Collin Cureageous.
Tuesday, July 27, 2010
Tuesday, July 27
Collin's fussiness, restlessness, and poor sleep continued yesterday and last night. It was very rough knowing that something wasn't right, but not knowing quite what the problem was and how to make it better. Today we had a clinic appointment, and in talking to the doctor we quickly figured out what was making Collin so unhappy. The labwork done yesterday showed his blood counts to be very high-higher than even before he started his first round of chemo; the Neupogen shots did their job and caused Collin's bone marrow to produce a LOT of blood cells. The doctor explained that the whole process actually causes the bones to expand and ache, so for the last three days, Collin's little body has been hurting. On one hand it was a relief to know what the cause of his discomfort was, but on the other hand I feel like a bad mother because despite him having had Neupogen twice before, it never occurred to me that that was why he was uncomfortable and I should have given him pain medication. So now we are treating his pain, and in a few days he should be feeling better.
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