We took a stroll in the yard for a few minutes this afternoon to enjoy some of the beautiful weather we missed out on over the last two months. Collin seemed to enjoy being outside, and was excited when the gentle breeze blew. We didn't stay out long though because his skin is so sensitive and I don't want him to burn.
When Collin was born, his sister called him her "princey fellow." Collin was diagnosed with High Risk Metastatic Medulloblastoma (a brain tumor that had spread to his spine) on 4/22/10 at 16 months of age. He has had brain surgery, high dose chemo, an autologous stem-cell rescue, maintenance chemo, a phase II trial, more chemo, and radiation to his brain and spine. He has relapsed twice, but is fighting with such strength and courage, we have more recently dubbed him Collin Cureageous.
Friday, July 2, 2010
Thursday July 1
Collin had his first outpatient physical therapy session today. It was at the same location as yesterday's OT session, and he was very excited to see the little play kitchen again! He again sat on the bench in front of it and tried to pull himself up to standing so he could reach better; when he is engrossed in play, he tries to do things automatically without thinking too much about them. The physical therapist assessed his abilities, and gave us a list of things to work on at home, such as balance while reaching, getting onto his hands and knees from a sitting position, etc. The session tired Collin out; he took two good naps today!
We took a stroll in the yard for a few minutes this afternoon to enjoy some of the beautiful weather we missed out on over the last two months. Collin seemed to enjoy being outside, and was excited when the gentle breeze blew. We didn't stay out long though because his skin is so sensitive and I don't want him to burn.
I've tried Collin with tiny pieces of food that he can pick up in his fingers and feed himself. He's handling them well, and enjoys feeding himself. The process is very slow, but it's nice to see his enthusiasm for eating again!
We took a stroll in the yard for a few minutes this afternoon to enjoy some of the beautiful weather we missed out on over the last two months. Collin seemed to enjoy being outside, and was excited when the gentle breeze blew. We didn't stay out long though because his skin is so sensitive and I don't want him to burn.
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