This weekend was another quiet one; we just stayed home because with Collin's weakened immune system we don't want to chance taking him around large groups of people and exposing him to anything. The last two nights he did not sleep well; he was restless and woke up frequently. He has seemed fussier during the day as well. Luckily he has not had a fever since coming home from the hospital Friday. His bloodwork on Friday showed his hemoglobin level to be 8.1; he usually needs a blood transfusion if he falls below 8. If his level is still low, it's possible that he just doesn't feel well, and that's why he's been so fussy. A nurse will come draw blood for labwork tomorrow morning, so hopefully by the end of tomorrow we'll know if his hemoglobin is up or down and whether he'll need another blood transfusion. I'm also hoping the bloodwork will show that his immune system is increasing enough that we can stop giving the Neupogen shots!
Tonight I was trying to get Collin all ready for bed a little earlier since he doesn't seem right. But as usual, things didn't go as smoothly as I had hoped. As I started to give his meds through his NG tube, it clogged. We tried flushing it with some soda hoping the carbonation would help dissolve the clog, but it didn't work. We were left with no choice but to replace the feeding tube again. It was the last thing I wanted to put him through, especially after Bill had just given him his shot. Overall though, the procedure went much quicker than the last time I had to replace the tube. I ended up putting it in the left side of his nose this time, because the skin on his right cheek is so red, irritated, and sore from the tape used to hold the tube in place that I wanted to give his skin a break. Now I just hope he doesn't start to pick at the tube because he's not used to it being on the left side of his face.
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