Chemo Round 2, Day 4
Today was another good day. Collin did have some intermittent vomiting, but nothing that lasted too long. He continued to enjoy eating and did so with no problems. He participated in his physical therapy and occupational therapy sessions with enthusiasm, exhibiting age-appropriate play, making his needs/wants known by pointing and making verbal sounds, and following requests appropriately. He has tired easily over the last few days, but I'm unsure as to whether it is due to the Risperdal (or other drug) or the chemo.
Collin woke up at 10:45 tonight and started crying and throwing himself around, arching his back, etc. I was unable to comfort him, so I requested a dose of Morphine for him. He was then able to calm down and go back to sleep. It's frustrating not to know what is causing him pain; it could be the blood in his brain, his jaw or limbs due to the chemo drugs, etc. At least he doesn't have to suffer once he has the Morphine.
The Patient Advocate came to see me today and listened to what I had to say about the neurologist. She also said that she can see that my letter of complaint gets to the proper people.
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