Monday, August 9, 2010

Monday, August 9

I'm a little behind on my updates, so I will try to summarize the last few days....

Friday, August 6 - Chemo Round 4, Day 3
Friday was a fairly quiet day. Collin received Methotrexate, his last dose of chemo for this round, at 4:00 in the morning. He will be given Leucovorin, the vitamin rescue agent, until labs show the Methotrexate level in his blood to be lower than 1.0. Friday morning, he had Physical Therapy and Music Therapy together, which is always fun. We sang, and Collin stood with assistance and reached for different musical instruments.

Saturday, August 7 - Chemo Round 4, Day 4
Collin received a blood transfusion Saturday afternoon. As in the past, he was pre-medicated with Tylenol and Benadryl before the transfusion to prevent any alleric reactions, so he spent a good bit of the afternoon napping because the Benadryl made him sleepy. When Bill and Neya arrived in the early evening to visit, Collin really perked up and enjoyed their visit. Saturday night we were both exhausted, and had the best night's sleep we've had in a very long time!

Sunday, August 8 - Chemo Round 4, Day 5
Collin had a great day Sunday. He was happy and enjoyed playing all day. He also ate pretty well. His Methotrexate level was down to .09 already, so the drug cleared his system pretty quickly. I was thinking about how scared I was the first day of the first round of chemo in May, and how now it's all become so routine.

Monday, August 9 - Chemo Round 4, Day 6Today was a harder day for us. Collin was fussy all day long, and it was very difficult to find much that made him happy. He also received IVIg today. He was premedicated with Tylenol and Benadryl, and the infusion was run very slowly to prevent the life-threatening reaction he experienced the first time he had the drug. His vital signs were taken every fifteen minutes for the first hour of the infusion, and then every hour until the infusion is complete, which should be around midnight tonight. He has had no problems with the infusion today, and I was thinking about how different today was from the first time he received IVIg. I've been watching Collin's last few eyelashes; he's down to one eyelash near the outer corner of his left eye. I know they will grow back, but Collin had long, beautiful eyelashes before starting chemo, and I'm sad that they're gone. Collin got a new hat today that looks very cute on him, and when I showed him his reflection in the mirror when he had the hat on, he smiled. He ate pretty well at dinner, and ate a small cup of chocolate ice cream after dinner-a third of which he fed himself, and all of which he really enjoyed!


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