About an hour after they had rushed Collin back to the PICU to place the drain, they told us we could see him. The sight shocked me; his head had a large dressing on it, and there was now a thin tube coming out from under that dressing. The tube was connected to a piece of equipment, the drain, that collected the CSF that drained out of Collin's head. The drain had to be kept exactly level with Collin's ear, and the nurses did use a level to make sure it was where it needed to be. They explained that the drain was at zero, and that eventually they would challenge it by slowly raising the level higher; that way they could see the amount of pressure that was needed to drain the fluid out of Collin's head. Collin's hands were also tied to the bed now, to prevent him from grabbing the drain and pulling it out. I completely understood the necessity, but that didn't make it any easier to accept the fact that I couldn't hold my baby anymore. Collin's neurosurgeon felt that there was a 60/40 chance that Collin would end up needing a shunt, so that surgery was tentatively scheduled for the following Monday.
When Collin was born, his sister called him her "princey fellow." Collin was diagnosed with High Risk Metastatic Medulloblastoma (a brain tumor that had spread to his spine) on 4/22/10 at 16 months of age. He has had brain surgery, high dose chemo, an autologous stem-cell rescue, maintenance chemo, a phase II trial, more chemo, and radiation to his brain and spine. He has relapsed twice, but is fighting with such strength and courage, we have more recently dubbed him Collin Cureageous.
Thursday, April 29, 2010
Thursday, April 29
About an hour after they had rushed Collin back to the PICU to place the drain, they told us we could see him. The sight shocked me; his head had a large dressing on it, and there was now a thin tube coming out from under that dressing. The tube was connected to a piece of equipment, the drain, that collected the CSF that drained out of Collin's head. The drain had to be kept exactly level with Collin's ear, and the nurses did use a level to make sure it was where it needed to be. They explained that the drain was at zero, and that eventually they would challenge it by slowly raising the level higher; that way they could see the amount of pressure that was needed to drain the fluid out of Collin's head. Collin's hands were also tied to the bed now, to prevent him from grabbing the drain and pulling it out. I completely understood the necessity, but that didn't make it any easier to accept the fact that I couldn't hold my baby anymore. Collin's neurosurgeon felt that there was a 60/40 chance that Collin would end up needing a shunt, so that surgery was tentatively scheduled for the following Monday.
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