When Collin was born, his sister called him her "princey fellow." Collin was diagnosed with High Risk Metastatic Medulloblastoma (a brain tumor that had spread to his spine) on 4/22/10 at 16 months of age. He has had brain surgery, high dose chemo, an autologous stem-cell rescue, maintenance chemo, a phase II trial, more chemo, and radiation to his brain and spine. He has relapsed twice, but is fighting with such strength and courage, we have more recently dubbed him Collin Cureageous.
Friday, April 30, 2010
Friday, April 30
Collin seemed to be focusing his eyes a little better; now it seemed like he was actually looking at us for a few moments at a time instead of through us. A nurse came to do the ultrasound for the placement of the PICC line. Since we were there and watching so closely, she untied Collin's restraints. He then found the bottle of ultrasound gel, which he picked up and began to play with. He used both hands to hold and play with the bottle of gel, and seeing him using his right hand, which he hadn't been using much, was an encouraging sign. Bill played Collin's favorite music videos on his iPhone, and for once it didn't agitate him; instead he used both hands to hold onto the phone as he watched the videos. He even gave the phone back to Bill when I asked him if he could, which meant to me that he was understanding us. I felt so encouraged to see him finally enjoy something.
Friday afternoon they tried for over an hour to place the PICC line. They tried placing it in both arms, and had no luck because Collin's veins were too small. So instead he ended up with a femoral line placed in his groin, but they'd be able to use it to take blood as well as administer medications, so he would be more comfortable and not have to be pricked with needles anymore.
Collin's white blood cell count was elevated, so they sent samples of blood, urine, and CSF to check for infection.
Collin was groggy and seemed to be moaning again. I just wanted to be able to hold my little man, and he seemed to want to be held, but because his hands were restrained and the EVD had to remain level with his ear, it was impossible for me to hold him.
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