Our Little Princey Fellow - Collin Cureageous

When Collin was born, his sister called him her "princey fellow." Collin was diagnosed with High Risk Metastatic Medulloblastoma (a brain tumor that had spread to his spine) on 4/22/10 at 16 months of age. He has had brain surgery, high dose chemo, an autologous stem-cell rescue, maintenance chemo, a phase II trial, more chemo, and radiation to his brain and spine. He has relapsed twice, but is fighting with such strength and courage, we have more recently dubbed him Collin Cureageous.

Sunday, September 18, 2011

Collin, Neya, Bill and I will be walking in the Four Diamonds Fund 5K next Sunday September 25. Please consider making a donation to help us give back to the FDF for all the help they've given us, and to raise money to help other kids with cancer. No amount is too small! Just click here to make a tax deductible donation. Thank you, thank you, thank you!

1 comment:

AnonymousSeptember 21, 2011 at 7:23 AM
Enjoy the walk, hopefully it will be a nice day for a walk. We are going home, finally the battle has been won.Now we go back to our "NORMAL" life. I do have to ask......what is normal? Anyway, Bill, Jen,Neya, and Collin(The Warrior)...our thoughts and prayers go out to you and all the cancer warriors. Thank you for being there with a smile when even I needed to cheer up. Thank god our children had the wonderful(beautiful,and hottt) smart, and friendly nurses they did. I don't think enough could be said about how much good they really do. GO COLLIN
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I am the proud mom of 2 wonderful kids, Neya (born in 2004) and Collin (born in 2008). When Collin was born, Neya loved princesses, and called her baby brother her "princey fellow." As a mom, my greatest fear in life is something happening to one of my children. My fear was realized when my sweet 16 month old son was diagnosed with cancer in April of 2010. I have watched him go through things no child should ever experience, and I am in awe of his strength. He is my hero.

I have learned that cancer is the #1 cause of disease-related death in children under the age of 20, killing more than asthma, cystic fibrosis, diabetes and pediatric AIDS combined. 46 children are diagnosed with cancer every single day. 7 children die from cancer every single day. 1 out of every 5 children diagnosed with cancer will die. There are 5 children diagnosed with cancer for every one diagnosed with pediatric AIDS, yet only $20,000 is invested in cancer research for every $595,000 invested in pediatric AIDS research. Of the National Cancer Institute's budget of $4.6 billion, breast cancer received 12%, prostate cancer received 7%, and all 12 major groups of pediatric cancer combined received less than 3%.

I started this blog as a way of keeping loved ones and friends updated on Collin. Now I also hope that his story will help raise awareness about Medulloblastoma and all childhood cancers. Awareness about childhood cancer needs to be increased so that it may some day receive the funding it deserves so that a cure can be found. Children deserve the chance to grow up and live their dreams; they shouldn't have to fight for the chance to live.

For more information on Medulloblastoma, view this document from the American Brain Tumor Association web site.